TREAT-NMD

Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world

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Website updates

Help us stay up to date!

We welcome input from the people who use our website and want to help us keep it up to date.

If you have found something inaccurate or out of date – especially if it’s about your own organization or meeting or even yourself – please submit an update using one of the forms below and we will update the website as quickly as we can.

Don’t forget you can also contact us at info@treat-nmd.org

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Contact details

Please fill out this form if you wish your information on this website to be updated. If you have any questions, please contact us at info@treat-nmd.org

Your organization address
Data Protection Statement: The information gathered on this form will be used to ensure that the records held by TREAT-NMD coordination office are up to date, and will not be used for any other purpose nor passed to third parties.

Organisation details

Please fill out this form if you wish organization related information shown on our site to be updated.

If you have any questions please do not hesitate to contact info@treat-nmd.org.

Please provide us with your contact details which may be used to verify submitted content with you before it is uploaded but will not appear on the website.

Your contact details

Contact information submitted in this section of this form will not be shown on our website

We will only use this information you provide here to get in touch with you about this particular registry listing.
Once we have attended to this then we will delete the information you have sent us from our database this includes your name and email address. If you would like your information deleted sooner than this please get in touch using info@treat-nmd.org

Update organization information

Information submitted in this section might form part of an organization listing on our website


Registry organization address

Website address

Contact email addresses

Phone number

About the organization

Please supply information about the organization

Allowed file types = jpeg, jpg, png
Maximum files size = 5mb

Submit newsletter article

Please fill out the form below as completely as is possible to submit an article to be considered for inclusion in the newsletter.

Please provide us with your contact details which may be used to verify submitted content with you before it is uploaded but will not appear on the website.

Guidelines for article submission.

Please fill out this online form as completely as possible.

Please bear in mind that TREAT-NMD newsletter recipients are located throughout the world. Your article should be of interest to as many people as possible.

We may need to edit your article for space requirements or to conform to our newsletter style.

Every effort will be made to include your article at the appropriate time. To enable us to do this, please send your submissions at least a couple of days in advance of anticipated publication.

If we do not publish an article this does not constitute a value judgment of the work’s quality. It could be that it does not meet to our current needs or requirements.

If you have any questions please contact us at info@treat-nmd.org

Your contact details

Contact information sent to us in this section of the form will not be shown on our website

Newsletter article details

Information submitted in this section might form part of a newsletter article which would be sent out to our subscribers and included on our website

Accepted file formats = jpg, jpeg, png
Maximum file size = 5mb

Upload a file such as a programme or flyer
Allowed file format = pdf
Maximum file size = 5mb

If the article needs to included before a certain time will try our best to do so, however this cannot be guaranteed.
It should be noted that the TREAT-NMD newsletter is generally sent out on a monthly basis except during holiday periods such as Christmas and summer.

Data Protection Statement: The information gathered on this form will be used for the purpose of creating the TREAT-NMD newsletter and associated articles that may appear  on the TREAT-NMD website.

Update registry information

Please fill out this form if you wish your registry information shown on our site to be updated.

If you have any questions please do not hesitate to contact info@treat-nmd.org.

Please provide us with your contact details which may be used to verify submitted content with you before it is uploaded but will not appear on the website.

Your contact details

Contact information submitted in this section of this form will not be shown on our website

We will only use this information you provide here to get in touch with you about this particular registry listing.
Once we have attended to this then we will delete the information you have sent us from our database this includes your name and email address. If you would like your information deleted sooner than this please get in touch using info@treat-nmd.eu

Update registry information

Information submitted in this section might form part of the registry listing on our website


Registry organization address

Contact email addresses

Website address

Phone number

About the registry

Please supply information about your registry in both the regional language and also English

List an event

Please fill out this form if you wish to list an event on our website. If you have any questions please contact us at info@treat-nmd.org. We may need to edit your information for space requirements or to conform to our website style.

Every effort will be made to include your event on the website in good time.

If we do not include your event on the website this does not constitute a value judgment of the event. It could be that it does not meet to our current needs or requirements.

Your contact details

Contact information submitted in this section of this form will not be shown on our website

We will only use this information you provide here to get in touch with you about this particular event.
Once we have added the event to our website then we will delete the information you have sent us from our database this includes your name and email address. If you would like your information deleted sooner than this please get in touch using info@treat-nmd.org

Event details

Information submitted in this section might form part of the event listing on our website

Allowed file formats - jpg, jpeg, png
Maximum file size - 5mb

Other site updates

Please fill out this form if you wish to tell us about something you think needs to be looked at on our website. If you have any questions please contact us at info@treat-nmd.org. We may need to edit any information you send us for space requirements or to conform to our website style.

If we decide to adopt your suggestion every effort will be made to do this in good time.

If we do not include your suggestion on the website this does not constitute a value judgment. It could be that it does not meet to our current needs or requirements.

Your contact details

Contact information submitted in this section of this form will not be shown on our website

We will only use this information you provide here to get in touch with you about this particular suggestion. Once we have dealt with this then we will delete the information you have sent us from our database this includes your name and email address. If you would like your information deleted sooner than this please get in touch using info@ern-euro-nmd.eu

Details of webpage that needs updating

Information submitted in this section might be included on our website

TREAT-NMD