Guide for Families

In 2018 the Muscular Dystrophy Association, Parent Project Muscular Dystrophy, TREAT-NMD and the World Duchenne Organisation came together to produce a comprehensive Duchenne Guide for Families.

This guide uses updated recommendations to ensure that the very latest in care standards are accessible to all people living with Duchenne.

We provide the guide in a number of different formats and languages.

1) Download

Download a PDF of the Duchenne Guide for Families 2018 in English. This will soon be available in a number of different languages. 2010 Guides will be replaced by 2018 updates as soon as translations are available.

2) Online

Visit our Online Family Guide

The online version of the guide is available in a number of different languages with more in due course.