TREAT-NMD Members – Organisations
We are delighted that the following organisations have signed up to become members of TREAT-NMD.
(Please note : The following list is arranged in country order.)
Asociación Civil Familias Atrofia Muscular Espinal (AME) Argentina
Argentina
Center of Medical Genetics and Primary Health Care
Armenia
Australasian Neuromuscular Network
Australia
Enriched Health
Australia
Muscular Dystrophy Qld
Australia
Muscular Dystrophy Queensland
Australia
Muscular Dystrophy Western Australia
Australia
Office of Population Health Genomics
Australia
Rare Voices Australia
Australia
Save Our Sons Duchenne Foundation
Australia
Sydney Children's Hospital
Australia
The Royal Children's Hospital
Australia
Centre de Référence Neuromusculaire Erasme HUDERF, Université Libre de Bruxelles
Belgium
Duchenne Parent Project Belgie
Belgium
European CMT Federation
Belgium
Spierziekten Vlaanderen
Belgium
ADB Alianca Distrofia Brasil
Brazil
Faculdade de medicina ABC
Brazil
Hospital Escola Universidade Federal de Pelotas
Brazil
School of Medicine of ABC
Brazil
Bulgarian NMD society
Bulgaria
Canadian Pediatric Neuromuscular Group
Canada
Muscular Dystrophy Canada
Canada
Corporacion Familias Atrofia Muscular Espinal, FAME Chile
Chile
Fundación DSG-Duchenne
Chile
Children Hospital of Fudan University
China
China DMD care and Support Association
China
Department of Pediatrics, Union Hospital, Fujian Medical University
China
General Hospital of Chinese Armed Police Forces
China
Meier Advocacy and Support Center for SMA
China
Peking Union Medical College Hospital
China
Shenzhen Muscular Dystrophy Baby Care Center
China
Famecol S&S (Fundación Atrofia Muscular Espinal Colombia Sara y Sofia
Colombia
Famecol.S&S
Colombia
Association Aux Pas du Coeur
Cote d'Ivoire
Referral Center for Pediatric Neuromuscular disorders of Croatian Ministery of Health, Department of Pediatrics, Clinical Medical Centre Zagreb University of Zagreb Medical School and Croatian Society for Child Neurology
Croatia
Cyprus Institute of Neurology and Genetics
Cyprus
Opus Lacrimosa, z. u.
Czech Republic
Asociace Muskularnich Dystrofiku v CR
Czech Republic
End Duchenne z.s.
Czech Republic
RehabiliteringsCenter for Muskelsvind (RCFM)
Denmark
Rigshospitalet Paediatric Neurology
Denmark
MyoCare National Foundation Egypt
Egypt
Neuromuscular unit
Egypt
Pediatric neurology unit, Children's Hospital
Egypt
Institut of Myology
France
Georgian Association of Neuromuscular & Electrodiagnostic Medicine
Georgia
Georgian Association of Neuromuscular & Electrodiagnostic Medicine
Georgia
Georgian Association of Child neurology and Neurosurgery
Georgia
Aktion Benni & co e.V.
Germany
Children´s University Hospital, Dept. of Neuropediatrics, Neuromuscular Center
Germany
Department of Neurology, University Hospital of Cologne
Germany
Deutsche Muskelstiftung
Germany
MGZ Medizinisch Genetisches Zentrum
Germany
Saarland University Hospital
Germany
Universitaetsmedizin Goettingen
Germany
ZNM - Zusammen Stark! e. V.
Germany
Greek Association of myopathy awareness Duchenne / Becker
Greece
MDA HELLAS
Greece
MDA HELLAS
Greece
Department of Paediatrics and Adolescent Medicine, The University of Hong Kong
Hong Kong
Misko Foundation
Hungary
FSMA Families of SMA in Iceland
Iceland
All Haryana Muscular Dystropathy Association Karnal Haryana India
India
Ayushkama Foundation
India
INDIAN MUSCULAR DYSTROPHY SOCIETY
India
Molecular Diagnositics, Counseling, Care & Research Centre
India
Molecular Diagnostics Counselling Care and Research Centre
India
Muscular Dystrophy Foundation India
India
Muscular Dystrophy Foundation India
India
Muscular Dystrophy Foundation India
India
Muscular Dystrophy Foundation India
India
Muscular Dystrophy Foundation India
India
Muscular Dystrophy Foundation India
India
SAMSKARA
India
The Ayush Samiti / AMDS India
India
The Ayushi Samiti
India
World Without GNE Myopathy
India
Pasteur Institute of Iran
Iran
Duchenne Ireland
Ireland
Join Our Boys Duchenne Research Foundaiton
Ireland
SMA Multidisciplinary Clinic, Pediatric Neurology Institute, Tel Aviv Sourasky Medical Center
Israel
FSHD ITALIA ONLUS
Italy
GFB Family Group of Beta-sarcoglycanopathy
Italy
IRCCS S. Camillo Hospital,Venice
Italy
Parent Project Onlus
Italy
University of Pisa
Italy
Japan Muscular Dystrophy Association, Corp.
Japan
Handicapped and Disabled People of Kosovo
Kosovo
Kuwait Medical Genetic Center/KMGC
Kuwait
Lebanese Association for Neuromuscular Diseases
Lebanon
Justas charity fund
Lithuania
STOP SMA Macedonia
Macedonia, former Yugoslav Republic of
Persatuan Ceria Jaya (WECAREJOURNEY)
Malaysia
WE CARE JOURNEY (PERSATUAN KEBAJIKAN CERIAJAYA KUALA LUMPUR DAN SELANGOR (WECAREJOURNEY))
Malaysia
Fundacion Mexicana de Enfermedades Geneticas y Medicina Genomica A.C.
Mexico
Sociedad Mexicana de la Distrofia Muscular A.C..
Mexico
Institute of Mother and Child Health Care
Moldova
Global Nepali Health And Research Center (GNHRC)
Nepal
Muscular Dystrophy Organization Nepal
Nepal
Muscular Dystrophy Organization Nepal
Nepal
Stichting Spierkracht
Netherlands
Duchenne Parent Project
Netherlands
Duchenne Parent Project
Netherlands
Dutch Neuromuscular Disease Association (Spierziekten Nederland)
Netherlands
European Neuromuscular Centre
Netherlands
European NeuroMuscular Centre (ENMC)
Netherlands
FSHD EUROPE
Netherlands
FSHD Foundation
Netherlands
Muscular Dystrophy Association (New Zealand)
New Zealand
NZ NMD Registry
New Zealand
Center for Inborn and Hereditary Muscular Disorders
Norway
Foreningen for muskelsyke
Norway
National Neuromuscular Center, Norway, University Hospital of North Norway
Norway
Neuromuscular Assosiation Norway (FFM)
Norway
Stowarzyszenie Rodzin SMARD1
Poland
hospital dona estefânia- centro hospitalar de lisboa central
Portugal
Weill Cornell Medicine Qatar
Qatar
Asociatia Parent Project Romania
Romania
Parent Project Duchenne Russia
Russia
ProDuchenne
Russia
SMA Family Foundation Russia
Russia
King Faisal specialist Hospital And Research Center
Saudi Arabia
King Faisal specialist Hospital And Research Center
Saudi Arabia
Clinic for Neurology and Psychiatry for Children and Youth
Serbia
Association Conquistando Escalones
Spain
Federación Española de Enfermedades Neuromusculares
Spain
FUNDACIÓN ANDRÉS MARCIO NIÑOS CONTRA LA LAMINOPATÍA
Spain
Fundacion Andres Marcio Niños contra la Laminopatia
Spain
FUNDAME (FUNDACIÓN ATROFIA MUSCULAR ESPINAL)
Spain
GBS|CIDP España- Polineuropatías Inmunomediadas
Spain
Neuromuscular Unit. Hospital Sant Joan de Deu. Institut de Recerca Sant Joan de Deu.
Spain
Neuromuscular Unit. Neuroscience Area. Biodonostia Health Institute. Neurology Department. Donostia University Hospital. Osakidetza.
Spain
Pequeños Superheroes
Spain
3H Biomedical AB
Sweden
Nätverket för spinal muskelatrofi
Sweden
Neuromuscular Center
Sweden
Center for Neuromuscular Diseases, Department of Neurology, Inselspital, Bern University Hospital
Switzerland
SMA Schweiz
Switzerland
Swiss Foundation for Research on Muscle Diseases
Switzerland
Swiss Foundation for Research on Muscle Diseases
Switzerland
Siriraj Hospital, Mahidol University
Thailand
Lokman Hekim University
Turkey
DMD Aileleri Derneği
Turkey
Hacettepe University
Turkey
Neuromuscular Disorders Association of Turkey
Turkey
SMA GRUBU
Turkey
SMA HASTALIĞI İLE MÜCADELE DERNEĞİ TURKEY
Turkey
CSMA, Charitable Foundation
Ukraine
Harmony
Ukraine
Heart Mother
Ukraine
NGO Duchenne Ukraine
Ukraine
Public organization "Ukrainian parent project"MIO-LIFE"
Ukraine
Public organization "Ukrainian parent project"MIO-LIFE"
Ukraine
State Institution"Institute of Neurology, Psychiatry and Narcology of NAMS of Ukraine"
Ukraine
Ukrainian Neuromuscular Diseases and Peripheral Nervous System Diseases Association
Ukraine
Action Duchenne
United Kingdom
Alex's WIsh
United Kingdom
Duchenne Alliance
United Kingdom
Duchenne Children's Trust
United Kingdom
Duchenne Family Support Group
United Kingdom
DUCHENNE NOW
United Kingdom
Genetic Alliance UK
United Kingdom
Harrison's Fund
United Kingdom
Harrison’s Fund
United Kingdom
Joining Jack
United Kingdom
Myotonic Dystrophy Support Group
United Kingdom
Myotubular Trust
United Kingdom
SMA Europe
United Kingdom
The Jennifer Trust for Spinal Muscular Atrophy
United Kingdom
Ariadne Diagnostics LLC
United States of America
BioBlast Pharma Ltd.
United States of America
Coalition to Cure Calpain 3
United States of America
Cooperative International Neuromuscular Research Group (CINRG)
United States of America
cTAP
United States of America
Cure VCP Disease, Inc.
United States of America
CureDuchenne
United States of America
Duchenne Alliance
United States of America
Edgewise Therapeutics
United States of America
Fulcrum Therapeutics
United States of America
Hereditary Neuropathy Foundation
United States of America
Hope for Gus Foundation
United States of America
Jain Foundation
United States of America
LGMD Awareness Foundation, Inc.
United States of America
LGMD-1D DNAJB6 Foundation
United States of America
LGMD2L Foundation
United States of America
Medpace
United States of America
Myotonic Dystrophy Foundation
United States of America
Parent Project Muscular Dystrophy
United States of America
Pfizer
United States of America
PhaseBio Pharmaceuticals Inc.
United States of America
Phrixus Pharmaceuticals, Inc.
United States of America
Saint Louis University
United States of America
SUNY-Downstate Medical Center
United States of America
Tonus Therapeutics
United States of America
TRiNDS
United States of America
Two Smiles One Hope Foundation
United States of America
University of Colorado Anschutz Medical Campus
United States of America
University of Florida- Powell Center for Rare Disease Research and Therapy
United States of America
University of Minnesota-Paul and Sheila Wellstone Muscular Dystrophy Center
United States of America
University of Missouri
United States of America
DMD Vietnam club
Vietnam