resources & support
resources & support
We have a wealth of resources for patients, clinicians and industry. We run a series of education projects from masterclasses to e-learning modules. In addition we provide many resources such as information on diseases, patient registries and updates on the latest developments in neuromuscular research.
Care
Care guides, Standards of Care, Diagnosis & Management, and Family guides for:
Registries by Disease
Patient Registries for: