Remudy(REgistry of MUscular DYstrophy) – Japan
The Japanese patient registry (Remudy; REgistry of Muscular DYstrophy) was started in July 2009. This is located at the National center of Neurology and Psychiatry (NCNP) in Tokyo and is sponsored by an intramural research grant for neurological and psychiatric disorders of NCNP. This project is supported by helpful cooperation with the Japan Muscular Dystrophy Association, Corp.
You can find the registry at http://www.remudy.jp/.
For further details contact remudy@ncnp.go.jp.
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日本のジストロフィノパチー患者さんの登録が2009年7月に始まりました。東京の国立精神・神経医療研究センターに事務局があり、精神・神経疾患研究開発費により運営されています。この活動は、日本筋ジストロフィー協会との協力のもと行われています。登録のことは、http://www.remudy.jp/で知ることができます。詳しくは、remudy@ncnp.go.jpまでお問い合わせください。
Website:
http://www.remudy.jp/index.html
Email Address:
Secondary Email Address:
Contact Number:
+81-42-346-2309
Address:
Remudy Translational Medical Center
National Center of Neurology and Psychiatry
4-1-1 Ogawa-Higashi
Kodaira
Tokyo
Japan
187-8551

Language(s) spoken
Primary language
- Japanese
Registry type
- Adult
- Paediatric
Geographical coverage
- National
TGDOC Membership
- TGDOC Core Member Registry for FSHD
- TGDOC Core Member Registry for DMD
- TGDOC Core Member Registry for DM1
- TGDOC Affiliate Member Registry for GNE/HIBM
Data entry
- Patient reported/ Clinician verified: