New Zealand Neuromuscular Disease Registry (Punaha Io Neurogenetic Research Bank)
The New Zealand Neurogenetic Registry & Biobank covers all neuromuscular disorders.
Welcome to the NZ NMD Registry – providing opportunities for people with neuromuscular conditions to participate in research since 2011
A patient registry collects information about people who are affected by particular conditions. In anonymous form valuable medical data from the registry will be made available to researchers whose work is ethical and has been approved, thereby accelerating the research.
With the advent of clinical trials for many neuromuscular conditions, patient registries mean that people who may be eligible for certain clinical trials are readily identifiable and can be contacted quickly.
Neuromuscular conditions are rare conditions, so without a patient registry to gather patient details in one place, finding enough patients for a meaningful trial can take years, delaying the testing of potential therapies.
To view the NZ NMD Registry’s progress click here.
Click here to download a brochure on the NZ NMD Registry.
Please contact registry curator Miriam Rodrigues or visit the registry website for further details.
Website:
Email Address:
Secondary Email Address:
Contact Number:
+64 9 307 4949 ext. 25747
Address:
Auckland District Health Board Neurology
Private Bag 92024
Auckland, 1042
New Zealand

Language(s) spoken
Primary language
- English (NZ)
Registry type
- Adult
- Paediatric
Geographical coverage
- National
TGDOC Membership
- TGDOC Core Member Registry for SMA
- TGDOC Core Member Registry for DMD
- TGDOC Core Member Registry for DM1
- TGDOC Affiliate Member Registry for Pompe
- TGDOC Affiliate Member Registry for Non-Dystrophic Myotonias
- TGDOC Affiliate Member Registry for MTM/CNM
- TGDOC Affiliate Member Registry for LGMD
- TGDOC Affiliate Member Registry for GNE/HIBM
- TGDOC Affiliate Member Registry for FSHD
- TGDOC Affiliate Member Registry for CMT
- TGDOC Affiliate Member Registry for CMS
- TGDOC Affiliate Member Registry for CMD
Data entry
- Patient reported/ Clinician verified: