Egyptian Neuromuscular Registry
The Egyptian NMD registry is now open for registrations from DMD/BMD, LGMD, GNE, DM, CMD and FSHD patients in Egypt. Registrations from SMA patients will be possible in the near future. We also welcome registrations from patients with these conditions in other Arab countries. The registry aims to improve understanding about neuromuscular diseases, standards of care and treatment.
The registry is maintained by Myo-Care National Foundation For more information please contact Dr. Rasha El Sherif at
or by telephone on +201000995668.
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السجل المصري لمرضى ضمور العضلات DMD/BMD, LGMD, GNE, DM, CMD, FSHD الان متاح للتسجيل, كما نرحب بالمرضى من كل الدول العربية. ونهدف إلى الوصول الى افضل معايير الرعاية العالمية لمرضى ضمور العضلات. يتم التسجيل عن طريق مستشفى مصر للطيران. لمزيد من المعلومات يرجى الاتصال بالدكتور رشا الشريف استشاري الاعصاب و التشخيص الوراثي لامراض الاعصاب.
dr.rashaelsherif@gmail.com
Website:
https://egyptianneuromuscularregistry.com/
Email Address:
Secondary Email Address:
Contact Number:
+201000995668
Address:
Myo-Care Neuromuscular Center, Qasr Ad Dobarah, Abdeen, Egypt
4th Floor, HCC, Block 167/1- 1st Section - City Center, Egypt
Language(s) spoken
Primary language
- Arabic
Other language(s)
- English
Registry type
- Adult
- Paediatric
Geographical coverage
- Jordan
- Kenya
- Saudi Arabia
- Syria
- other - Egypt
TGDOC Membership
- TGDOC Core Member Registry for SMA
- TGDOC Core Member Registry for FSHD
- TGDOC Core Member Registry for DMD
- TGDOC Core Member Registry for DM1
- TGDOC Affiliate Member Registry for Pompe
- TGDOC Affiliate Member Registry for Non-Dystrophic Myotonias
- TGDOC Affiliate Member Registry for MTM/CNM
- TGDOC Affiliate Member Registry for LGMD
- TGDOC Affiliate Member Registry for GNE/HIBM
- TGDOC Affiliate Member Registry for CMT
- TGDOC Affiliate Member Registry for CMS
- TGDOC Affiliate Member Registry for CMD
Data entry
- Clinician Entered