Iranian SMA Registry
This registry is part of the pediatric NMD registry system of Shahid Beheshti University of Medical Sciences located in Mofid children’s hospital in Iran. This database aims to provide standards of care for diagnosis, investigation of risk factors, management, outcome assessment of infants and children with SMA, and social and rehabilitation of these children. Due to this registry, a multidisciplinary clinic for these children has been established, so they have been visited by child neurologist, physiatrist, and pediatric pulmonologist as teamwork in Mofid children’s hospital. The website of the Iranian SMA registry is available at iraniansma.ir. Several medical centers cooperate with this registry recently.
Mofid Children’s Medical Center,
Dr. Ali Shariati St,
- TGDOC Affiliate Member Registry for SMA
- Clinician Entered