UK Facioscapulohumeral (FSHD) Muscular Dystrophy Patient Registry
The UK FSHD Patient Registry is run from Newcastle University by Chiara Marini Bettolo with support from MDUK and in close collaboration with other clinical centres and patient representatives across the country.
The primary goals of the Registry are to facilitate clinical research in FSHD and to allow clinicians and researchers to better understand the condition.
Secondary Email Address:
+44 191 241 8640
The John Walton Muscular Dystrophy Research Centre
Institute of Genetic Medicine
International Centre for Life
Newcastle upon Tyne
- English (UK)
- TGDOC Core Member Registry for FSHD
- Clinician Entered
- Patient Entered