Italian Neuromuscular Registry
Register of patients with neuromuscular diseases
The registry collects personal, genetic and clinical data of patients suffering from neuromuscular diseases and arises from the need to order and update this information for epidemiological and research purposes, for a better knowledge of these diseases and to accelerate the development of new treatments.
The Italian Neuromuscular Registry is sponsored by the Associations Aisla, ASAMSI, Famiglie SMA, UILDM and the Telethon Foundation; it houses data of persons affected by DMD/BMD and SMA, who may register themselves in the registry through an online procedure at www.registronmd.it .
If you suffer from any of these conditions, we invite you to register with the Registry to be part of the community of patients and researchers, to be an active part in the fight against your illness and to benefit from all the positive effects that the Registry will allow you to obtain. .
Via S. Leonardo, 24/28 - 40125 - Bologna
- Clinician Entered
- Patient Entered