Suomen Lihastautirekisteri – The Finnish Patient Registry
* Please note this registry is currently on hold and cannot accept new patients *
The Finnish NMD registry for DMD and SMA patients is maintained by The Finnish Neuromuscular Disorders Association in collaboration with Finnish universities.
The curator is Ms. Hannele Koillinen, MD, PhD/ Clinical Geneticist and Pediatric Neurologist, Dept of Clinical Genetics, Turku University Hospital
Email Address:
Contact Number:
+358-50-455 7302
Address:
Language(s) spoken
Primary language
- Finnish
Data entry
- Patient Entered