Suomen Lihastautirekisteri – The Finnish Patient Registry
* Please note this registry is currently on hold and cannot accept new patients *
The Finnish NMD registry for DMD and SMA patients is maintained by The Finnish Neuromuscular Disorders Association in collaboration with Finnish universities.
The curator is Ms. Hannele Koillinen, MD, PhD/ Clinical Geneticist and Pediatric Neurologist, Dept of Clinical Genetics, Turku University Hospital
- Patient Entered