Chinese Genetic Disease Registry Center (CGDR)
The Chinese Genetic Disease Registry (CGDR) is a China-wide registry of people diagnosed with a genetic disease, especially for DMD/BMD and SMA. It collects important medical information from patients across the country to improve the understanding of genetic disease and accelerate the development of new therapies. CGDR is located at General Hospital of Chinese Armed Police Force in Beijing, which was started in September 2012. For more information please visit the CGDR website at www.dmd-registry.com or contact the CGDR National Office at firstname.lastname@example.org.
- TGDOC Core Member Registry for DMD
- TGDOC Affiliate Member Registry for SMA
- TGDOC Affiliate Member Registry for FSHD
- Patient reported/ Clinician verified: