UK Myotonic Dystrophy Patient Registry
As part of the international TREAT-NMD initiative, a national registry for all UK Myotonic Dystrophy (DM1) patients has been established in collaboration between the expert clinical centres, the MDUK and the Myotonic Dystrophy Support Group.
The UK DM1 Patient Registry is being run from Newcastle University by Chiara Marini Bettolo. The primary goals of the Registry are to facilitate clinical research in DM and to allow clinicians and researchers to better understand the condition.
Contact Number:+44 191 241 8640
John Walton Muscular Dystrophy Research Centre, Institute Of Genetic Medicine, Central Parkway, Newcastle upon Tyne, UK