DM1 registry – Australia
The Australian Myotonic Dystrophy (DM1) Registry has been developed to collate a patient’s DM1 gene sequence and clinical information about their disease. The Registry provides an important enabling tool for clinicians and clinical trial sponsors to quickly identify patients suitable for each study, particularly those therapeutic strategies that target specific genetic defects.
Australian Neuromuscular Disease Registry
Murdoch Children's Research Institute
Flemington Road, Parkville
Victoria 3052 Australia