Canadian Neuromuscular Disease Registry
The Canadian Neuromuscular Disease Registry (CNDR) is a Canada-wide registry of people diagnosed with a neuromuscular disease. It collects important medical information from patients across the country to improve the understanding of neuromuscular disease and accelerate the development of new therapies. For more information please visit the CNDR website at www.cndr.org or contact the CNDR National Office at admin@cndr.org.
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Le Canadian Neuromuscular Disease Registry (CNDR) est un registre national dans lequel est inscrit le nom de personnes atteintes d‘une maladie neuromusculaire. Il permet de recueillir des renseignements médicaux importants sur des malades, à l‘échelle du pays, afin d‘accroître les connaissances sur les maladies neuromusculaires et d‘accélérer l’élaboration de nouveaux traitements. Pour obtenir d’informations supplémentaires consultez le site Web du CNDR à www.cndr.org ou communiquer avec le bureau national du CNDR par courriel admin@cndr.org.
Website:
Email Address:
Secondary Email Address:
Contact Number:
1-877-401-4494
Address:
Canadian Neuromuscular Disease Reigstry/ Canadian Neuromuscular Disease Network (CAN-NMD)
Rm 2019 Health Sciences Centre
3330 Hospital Dr. NW
Calgary
Alberta
Canada
T2N 4N1
Language(s) spoken
Primary language
- English (Canada)
Registry type
- Adult
- Paediatric
Geographical coverage
- National
TGDOC Membership
- TGDOC Core Member Registry for DMD
- TGDOC Core Member Registry for DM1
- TGDOC Affiliate Member Registry for SMA
- TGDOC Affiliate Member Registry for Pompe
- TGDOC Affiliate Member Registry for LGMD
- TGDOC Affiliate Member Registry for CMT
- TGDOC Affiliate Member Registry for CMS
- TGDOC Affiliate Member Registry for CMD
Data entry
- Clinician Entered