Family Registry for Centronuclear and Myotubular Myopathies
This global map representing the ‘Family Registry for Centronuclear and Myotubular Myopathies‘ is an international patient registry collecting families contact information who’s lives have been afflicted with CNM/MTM. Upon consent, this data collection will be used for research initiatives as we unlock the mysteries of CNM/MTM.
Please note: If you have registered in other registries, you are welcome to register here as well as we build a visual representation of our community using geotagging.
Global conscience ushers in change, are you pinned yet?