TREAT-NMD Secretariat

David became CEO of TREAT-NMD services ltd  on the 1st November 2021. His aim is to support the growth and effectiveness of the TREAT-NMD Global Membership Alliance through the further …

As an Education Coordinator, Clare is responsible for the organisation of DMD Educational Masterclasses and related educational events and projects. As well as DMD projects, Clare also works on masterclasses …

Susan is a TREAT-NMD Data Systems Support Officer who helps to develop, manage and deliver the TREAT-NMD Global Registry Platform which will utilise the DMD, SMA and LGMD Dataset Modules.

Emma is the TGDOC Global Registry Support Assistant, and works alongside Helen Walker, to support TGDOC, the associated TGDOC Member Registries and the management of enquiries that are made for …

As a TREAT-NMD Data Systems Support Officer Mark supports the development and implementation of the Global Registries Platform Clinician and Patient Portal and also accompanying documentation.

In her role as TREAT-NMD Education Support Assistant, Lianne provides administrative support to the Education and Events Coordinators and through the co-ordination of actions and activities on their behalf, enables …

John is the Duchenne Muscular Dystrophy project manager working for the TREAT-NMD Enterprise. John is responsible for developing, integrating and rolling out the agreed Core & Expanded DMD Dataset across …

Caroline is the project manager responsible for developing, managing and delivering the TREAT-NMD Global Registries Platform which will utilise the DMD and SMA Core and Expanded Dataset Modules. Caroline is …

Ben has over 6 years’ experience in project management and evidence synthesis within the healthcare and academic sector. Having worked at the Regional Drug and Therapeutics Centre and the NIHR …

Laura is event and project support for TREAT-NMD primarily for TACT and Education. After university Laura spent almost 9 years working and living abroad in various countries. During this time, …

Sonia is the project manager responsible for establishing, managing and coordinating the LGMD Initial Core Dataset Project across the TREAT-NMD Registry Network. Sonia has a longstanding experience in Project Management for …

Cheryl is the Education Coordinator supporting the delivery of Educational Masterclasses and Working Groups. Cheryl has previous experience in the education sector having worked as a Teacher and Trainer in …

We would like to welcome and introduce everyone to Lynsey, a new employee of TREAT-NMD Services Ltd (the ‘Enterprise’) Lynsey has worked for the NHS for nearly 3 years and …

Cathy Turner is Duchenne Programme and TACT Coordinator at the John Walton Muscular Dystrophy Research Centre. Cathy has also been responsible for supporting the NeurOmics project with significant involvement in …

Janet is responsible for assisting in the development, integration and rolling out of our agreed Core & Expanded DMD Dataset across the TREAT-NMD Registry Network and supporting John McKenna (DMD …