TREAT-NMD Secretariat

David became CEO of TREAT-NMD services ltd  on the 1st November 2021. His aim is to support the growth and effectiveness of the TREAT-NMD Global Membership Alliance through the further …

As an Education Coordinator, Clare is responsible for the organisation of DMD Educational Masterclasses and related educational events and projects. As well as DMD projects, Clare also works on masterclasses …

Susan is a TREAT-NMD Data Systems Support Officer who helps to develop, manage and deliver the TREAT-NMD Global Registry Platform which will utilise the DMD, SMA and LGMD Dataset Modules.

Hsin has a degree in BSc (Hons) in Biomedical Sciences, and has recently been awarded with MSc in Business with international management from Northumbria University. Hsin worked in public healthcare …

Emma is the TGDOC Global Registry Support Assistant, and works alongside Helen Walker, to support TGDOC, the associated TGDOC Member Registries and the management of enquiries that are made for …

As a TREAT-NMD Data Systems Support Officer Mark supports the development and implementation of the Global Registries Platform Clinician and Patient Portal and also accompanying documentation.

In her role as TREAT-NMD Education Support Assistant, Lianne provides administrative support to the Education and Events Coordinators and through the co-ordination of actions and activities on their behalf, enables …

John is the Duchenne Muscular Dystrophy project manager working for the TREAT-NMD Enterprise. John is responsible for developing, integrating and rolling out the agreed Core & Expanded DMD Dataset across …

Ben has over 6 years’ experience in project management and evidence synthesis within the healthcare and academic sector. Having worked at the Regional Drug and Therapeutics Centre and the NIHR …

Laura is event and project support for TREAT-NMD primarily for TACT and Education. After university Laura spent almost 9 years working and living abroad in various countries. During this time, …

Sonia is the project manager responsible for establishing, managing and coordinating the LGMD Initial Core Dataset Project across the TREAT-NMD Registry Network. Sonia has a longstanding experience in Project Management for …

Cheryl is the Education Coordinator supporting the delivery of Educational Masterclasses and Working Groups. Cheryl has previous experience in the education sector having worked as a Teacher and Trainer in …

We would like to welcome and introduce everyone to Lynsey, a new employee of TREAT-NMD Services Ltd (the ‘Enterprise’) Lynsey has worked for the NHS for nearly 3 years and …

Janet is responsible for assisting in the development, integration and rolling out of our agreed Core & Expanded DMD Dataset across the TREAT-NMD Registry Network and supporting John McKenna (DMD …