TREAT-NMD Education Committee
Significant progress is being made in our understanding, diagnosis and management of neuromuscular diseases. There is a need to ensure that clinicians and other healthcare providers around the world involved in diagnosing, managing, treating and caring for patients living with neuromuscular diseases have access to information on the latest recommended practice and development, training and education.
TREAT-NMD recognised this need and created a range of masterclasses and a number of other education initiatives. The growing demand for these events led to the formation of the TREAT-NMD Education Committee (TEC). While the focus of TEC is on health care professionals, the Committee aspires to educate all stakeholders involved in the management and therapeutic development of NMD patients, including patients and families, industry colleagues and regulators.
Established in 2018, the TREAT-NMD Education Committee (TEC) is a board of experts (academics and patient representatives) who are affiliated with TREAT-NMD and have an interest in the education events and materials that TREAT-NMD produces. This group has overall responsibility for overseeing the quality, independence and appropriateness of all educational materials and activities created by, linked to or endorsed by TREAT-NMD.
For further information regarding the TEC and its role, please refer to the TREAT-NMD Education Committee Charter.
TREAT-NMD Education Committee
a.m.rus@lumc.nl
Prof. Dr. Annemieke Aartsma-Rus is a professor of Translational Genetics at the Department of Human Genetics of the Leiden University Medical Center.
Netherlands
Member
Jorge Alfredo Bevilacqua is currently Professor of the Department of Neurology and Neurosurgery of the Hospital Clínico Universidad de Chile, where he is the Head of the Neuromuscular Unit and …
Chile
Dr. Dziewczapolski is the Scientific Director of Cure CMD. He plays the role of liaison between researchers, clinicians, pharma industry, patients and families with the aim of accelerating CMD research, diagnostics, care …
United Kingdom
Olga Germanenko is founder and president, SMA Family Foundation, Russia. Olga has a daughter with SMA type 1 who was born in 2008. At that time, there was no information …
Russia
andoni.urtizberea@gmail.com
Dr Jon Andoni Urtizberea is head of the internationally renowned Paris Summer School of Myology and a consultant at the neuromuscular reference centre at Hendaye Hospital in the French Basque …
France
TEC Secretariat
As an Head of Education and Events, Clare is responsible for the organisation of educational events and projects. As well as DMD projects, Clare also works on masterclasses on SMA, …
United Kingdom