ZNM- Zusammen Stark! e. V.

We are the German association on myotubular myopathy and other centronuclear myopathies (CNM), those a severe congenital muscle conditions that are caused by mutations in the genes MTM1, DNM2, RYR1, TTN, and BIN.
Our objectives are:
Giving families a voice!
Sharing information about CNM and the latest Research!
Sponsor grants for research on a cure!
Networking with other organizations!