United Duchenne Parent Project
United Parent Projects Muscular Dystrophy (UPPMD) is owned and managed by parent project organisations set up by parents of children with Duchenne Muscular Dystrophy in many different countries all over the world. These national projects are run by parents for parents. UPPMD is managed by parents who lead the national parent projects.
The organisation came together after we realised that there was no sense in working in isolation from each other. We all share the same aims and dreams and they can be realised more efficiently using collective experiences and resources.