Patient association for distal myopathies
Patients Association for Distal Myopathies began in 2008 and provides much needed to support to those people in Japan affected by distal myopathies.
They actively promote and encourage the development of new drugs through scientific research. They also inform their members of the latest news in the field and strive to raise the awareness of distal myopathies amongst the general public.
Associated Contacts
Name: Yuriko Oda
Email Address: dmio-yuriko@enigata.com
Yuriko was diagnosed with GNE Myopathy in 2002 and founded PADM, the Patients Association for Distal Myopathy in 2008. Japanese scientist Dr. Ichizo N …
Website:
Main Email Address:
Contact Number:
+81 050 6860 5921
Country
Address:
4-15-1-8 Atago, Tama City, Tokyo 206-0041, Japan NPO PADM Secretariat
(〒206-0041 東京都多摩市愛宕4-15-1-8 NPO法人PADM 事務局)