Parent Project Muscular Dystrophy

Parent Project Muscular Dystrophy (PPMD) is the largest nonprofit organization in the United States focused entirely on Duchenne.

They take a comprehensive approach in the fight against Duchenne—funding research, raising awareness, promoting advocacy, connecting the community, and broadening treatment options.

Only this comprehensive approach will lead to the ultimate success—the day that 100% of those diagnosed can turn to a treatment that will end Duchenne.

PPMD was founded in 1994 by parents and grandparents who were frustrated by the lack of investment in Duchenne research. Today, their passion continues to drive the organization to improve the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne.

The name of the organization reflects our grassroots origins, parent-led focus, and passion, and is recognized around the world as the leader in the Duchenne community.

Because of their efforts, families affected by Duchenne have better access to state-of-the-art care information, research is moving forward at an accelerated pace, and legislation now exists to fund Duchenne research and outreach programs.