Parent Project Association
The association was founded in March 2004 by a small group of parents and grandparents of children who were diagnosed with Duchenne muscular dystrophy. The Association For Muscular Dystrophy Research and Assistance is a non-profit making association and is guided by the organisation’s president Isabela Tudorache.
Current objective include…
- Establishing a Resource Center for Muscular Dystrophy and neuromuscular disorders assistance
- Funding scholarships for the training of Romanian specialists in accredited research centers
- To promote contact, communication and exchange of valuable information in the field
- Ensure awareness throughout the medical community
In the immediate future intentions are to initiate a MD Care Act, which will see that DMD/BMD is given the same importance as other diseases.