Lithuanian association of patients with genetic neuromuscular diseases – Sraunija
Activitly collaborating with ‘Lopselis’ the well respected centre for chidlren with neuromuscular diseases in Kaunas, Lithuania. With the help of Dr. A Prasauskiene the director of Lopselis our aim is to establish a centre for neuromuscular diseases in Lithuania.
Also we are in contact with the Neurologic clinics of Santariškes in Vilnius(the largest clinics in Lithuania). Additionally we are working on Lithuanian patient registry and are in the process of translating the standards of care guides for DMD and SMA into Lithuanian.