Joshua Frase Foundation
The Joshua Frase Foundation is an organization with two main goals: To find a cure or treatment for Myotubular myopathy and to support families who’s lives are affected by congenital myopathies.
For two decades, JFF has been forging a path for MTM/CNM in raising funds to support cutting edge research in hopes of finding a treatment or cure for centronuclear myopathies. Over the past decade, they have assembled a team of leading researchers from a variety of fields, combining their respective areas of expertise into a multi-faceted approach, aimed at understanding how and why the body responds to Myotubular myopathy so that effective therapies can be formulated. Great strides are being made in this space.
Main Email Address:email@example.com
P.O. Box 2041, Ponte Vedra Beach, United States of America, FL 32004