Jain Foundation
The Jain Foundation is a non-profit foundation whose mission is to cure muscular dystrophies caused by dysferlin protein deficiency, which includes the clinical presentations Limb-girdle muscular dystrophy type 2B (LGMD2B) and Miyoshi muscular dystrophy 1 (MMD1). The foundation is privately funded and does not solicit funding from patients or other sources.
The Foundation’s focused strategy includes funding and actively monitoring the progress of scientific research projects in key pathways towards a cure, providing financial and logistical support to promising drug candidates to accelerate them to clinical trials, funding clinical trials and studies, encouraging collaboration among scientists, and educating LGMD2B/Miyoshi patients about their disease and helping them with their diagnosis (e.g., funding dysferlin protein and gene mutational analysis).
Associated Contacts
Name: Laura Rufibach
Email Address: lrufibach@jain-foundation.org
Dr. Rufibach has worked in the neuromuscular disease field for the past 27+ years as both a scientist and patient advocate. She earned her Ph.D. in Mo …


Website:
Main Email Address:
Contact Number:
+1 425 882-1492
Address:
Jain Foundation
9706 4th Ave NE, Suite 101
Seattle, WA 98115