Gruppo Familiari Beta-Sarcoglicanopatie Onlus (GFB ONLUS)
The Family Group of Beta-sarcoglycanopathy (GFB ONLUS) is a group of families with people with beta-sarcoglycanopathy and other Limb-girdle muscular dystrophies. THE GFB ONLUS is a non-profit organization and it was created to finance research projects aimed at treating Limb Girdle Muscular Dystrophy type 2E (LGMD2E).
Formed in February 2013 in Italy, since 2012, the family of GFB ONLUS has raised more than $750.000 for research into LGMD2E. Among other initiatives, the association is currently funding a gene therapy project about LGMD2E.
Main Email Address:
Via Civasca 112 , Talamona, Italy, SO 23018