FSH-MD Support Group UK
The FSH-MD Support Group UK is run by members for members and exists to improve the quality of life for those who have Facio-Scapulo-Humeral Muscular Dystrophy (FSHD), their carers, families and friends. We do this by offering support and information through our website and newsletters. The support group also has a private, very active forum page on Facebook where members can ask for advice or just exchange information that might improve member’s quality of life. We are a point of contact for the newly diagnosed and are able to put fellow FSHers in touch with each other. The group also runs annual themed ‘Get Togethers’, Information and research days and social events across the UK. We also work closely with the Muscular Dystrophy Campaign and when members join our group they automatically get free membership to the MDC.