Cure CMD
Cure CMD’s mission is to advance research for treatments and a cure for Congenital Muscular Dystrophies. We will improve the lives of those living with CMD through engagement and support of our community.
Cure CMD was founded in 2008 by three parents whose children were affected by Congenital Muscular Dystrophy. Through close collaboration with scientists, doctors, dedicated volunteers, involved families, and generous donors, Cure CMD has achieved significant impact in its first decade as a nonprofit organization:
- Launched two clinical trials
- Completed a five year natural history study
- Grew the Congenital Muscle Disease International Registry (CMDIR) to 2,600 registrants worldwide
- Co-Funded over $2 million in research grants
Associated Contacts
Name: Anne Rutkowski
Email Address: anne.rutkowski@curecmd.org
Dr Anne Rutkowski is a practising board-certified emergency medicine physician in Los Angeles. Anne’s daughter has congenital muscular dystrophy, subt …
Name: Diane Smith-Hoban
Email Address: diane.smith-hoban@curecmd.org
Diane Smith-Hoban is the mom to two great boys – Luke is 14 and has UCMD and his brother Christian is 13. She is a social worker by training with an …
Name: Susan Sklaroff Van Hook
Email Address: susan.sklaroff-vanhook@curecmd.org
Susan Sklaroff-Van Hook is a project support volunteer for the advocacy organization Cure CMD and is currently leading the initiative to develop lay g …
Website:
Main Email Address:
Contact Number:
+1 562 444 5656
Country
Address:
3217 E. Carson St. #1014, Lakewood, CA, 90712, United States of America