Cure CMD’s mission is to advance research for treatments and a cure for Congenital Muscular Dystrophies. We will improve the lives of those living with CMD through engagement and support of our community.
Cure CMD was founded in 2008 by three parents whose children were affected by Congenital Muscular Dystrophy. Through close collaboration with scientists, doctors, dedicated volunteers, involved families, and generous donors, Cure CMD has achieved significant impact in its first decade as a nonprofit organization:
- Launched two clinical trials
- Completed a five year natural history study
- Grew the Congenital Muscle Disease International Registry (CMDIR) to 2,600 registrants worldwide
- Co-Funded over $2 million in research grants