Associaçao Portuguesa de Doentes Neuromusculares – APN
The idea of the Association began to take shape in September 1991 when a group of Portuguese parents felt the need to unite. At that time, existing information was very difficult to find or just not available. APN was officially created on June 15, 1992.
Initially, it was felt necessary to reach the greatest number of people affected. Knowledge of various diseases and their causes at the time, were beginning to show signs of development and the founders created a great hope for the future. Contact with their French counterparts namely AFM (Association Française contre les Myopathy) was developed who were established and had experience of targeting research and providing support and care to families.