Amis FSH Europe

AMIS FSH Europe aims to establish and lead a European-wide community for those affected by facio-scapulohumeral

Their main aims are…

• treat and cure FSH
• make available all information and evidence
• promoting all the research for, directly or indirectly understanding of the disease, the development of treatment and prevention of disability
• facilitate the dissemination and exploitation of knowledge gained
• make people, governments and other organizations both national and international aware of issues surrounding research, care, prevention and healing
• to provide material, moral and technical support to patients
• promote social integration and to defend the interests of those affected by FSH

President : Manuel Cabral