Advancement of Research for Myopathies
Founded in 2000, Advancement of Research for Myopathies, a 501©(3) non-profit, has helped transform the landscape for the orphan/rare disease known as Hereditary Inclusion Body Myopathy (HIBM); a progressive and debilitating muscle wasting disorder caused by a gene defect. It touches those between 20 to 40 and, although progression is slow, it can lead a patient to quadriplegic state.
Through encouraging researchers to study this rare disease, and ultimately find a cure, ARM has greatly accelerated HIBM research and has been a vital role in gaining worldwide scientific interest in HIBM. By expanding awareness in the public and scientific community, raising funds for research, funding research projects around the world, and creating its own accredited non-profit molecular laboratory in 2002, HIBM Research Group (HRG), ARM & HRG has created and shared significant and crucial HIBM bio-materials. Because of these efforts, today HIBM has arrived to human trial stage for potential HIBM treatments. Only with your help can ARM continue its efforts to cure this debilitating condition.