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Newsletter
October 2022
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Welcome to our October newsletter of all the latest news and events from the neuromuscular community!
Articles in the edition...
- TREAT-NMD at the World Muscle Society Congress 2022
- Registration extended for the TREAT-NMD 7th International Conference
- EMA Qualification -SMA Core Dataset and Global Registries Platform
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TREAT-NMD's Updated Workstream
The aim of TREAT-NMD is to accelerate treatment and improve standards of care for people with neuromuscular disease. In order to best achieve this aim, over the past few months TREAT-NMD has been reviewing and updating our workstreams...
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EXCITING NEWS! REGISTRATION for the TREAT-NMD 7th International Conference has been EXTENDED!
The 7th TREAT-NMD International Conference is fast approaching and we want as many delegates as possible to join us at the Vancouver Convention Centre between Wednesday 7th and Friday 9th December. Spaces are now limited, but we are extending registration until Monday 21st November for anyone who still wishes to attend..
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World Muscle Society 2022, Halifax, Canada
The TREAT-NMD team were delighted to attend the 27th Annual Congress of the World Muscle Society. The congress took place earlier this month in Halifax, Canada and was an excellent opportunity for colleagues to catch up on the latest developments in neuromuscular diseases from around the world...
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EMA Qualification -SMA Core Dataset and Global Registries Platform
Since late last year, TREAT-NMD has been working towards EMA Qualification for our spinal muscular atrophy (SMA) core dataset and Global Registries Platform/Central Data Warehouse...
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The Neuromuscular Centre of Excellence, Ludhiana
Neuromuscular Centre of Excellence was launched at the Christian Medical College and Hospital, Ludhiana on the 28- Feb-2022 as part of the celebration of World Rare Diseases day. The aim of the centre is to provide comprehensive care: from awareness and advocacy, diagnosis and treatment to training and research focused on neuromuscular disorders...
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Videos to Support Adults Living with Duchenne Muscular Dystrophy
Earlier this year Muscular Dystrophy UK, in association with the Adult NorthStar Network, has funded and produced a collection of videos that provide an easy-access guide to the standards of care adults with Duchenne should receive from their doctors and therapists.
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World Duchenne Organisation Announces Accredited Duchenne Centres Programme
Earlier this month The World Duchenne Organization the launch of the Accredited Duchenne Centres Programme...
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This Month's Featured Event: The 9th Annual Congress of the European Academy of Neurology
The 9th annual congress of the European Academy of Neurology will take place in Budapest from 1-4 July, 2023. The Congress will provide a fantastic chance to come together and establish new connections as well as catching up with old ones. Themes include..
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