Welcome to our March Newsletter for all the latest TREAT-NMD news and events.
Articles in the edition...
TREAT-NMD conference programme released
Launch of the Daniel Ferguson Foundation
TREAT-NMD Education events success
TREAT-NMD Education Event Success
There were two firsts for the TREAT-NMD Education Team in the past few weeks; we held the first ever Education Masterclass for congenital myopathies (CM) in February and the first Duchenne muscular dystrophy (DMD) Early Diagnosis Seminar in March. We are pleased to say that both events were a great success...
CureDuchenne Renews Support for TACT Academic Applicants
During travel restrictions over the past two years, the TREAT-NMD Advisory Committee for Therapeutics (TACT) has still managed to meet the needs of those seeking advice on their therapy development programmes for neuromuscular diseases...
TREAT-NMD 7th International Conference Programme Released
Full details of the programme for the 7th International TREAT-NMD Conference have now been released. The event features an exciting line up of expert speakers and opens with the session on Patient Engagement featuring speakers Nathan Peck, founder and CEO of Cure VCP Disease Inc and Terry Pirovolakis, founder of CureSPG50...
We’re pleased to announce that the Swedish NMD Registry, Neuromuskulära sjukdomar i Sverige (NMD in Sweden) have recently completed their implementation of v1.2 of the Duchenne Muscular Dystrophy (DMD) dataset into their data collection platform...
FSHD Clinical Care Outcome Measures - A clinical Survey
This online survey will explore the range of outcome measures used in the clinical environment (ie. neuromuscular (MDA) clinics and rehabilitation facilities) to evaluate the functioning and quality of life of individuals with FSHD world-wide...
An important study has recently been announced between FSHD Europe and the John Walton Muscular Dystrophy Research Centre (JWMDRC) at Newcastle University...
For information on upcoming conferences, events and rare disease days please visit the events section of our website. If you wish to notify us of an event that should be included in our listing, please complete the event form.
