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Newsletter
December 2021
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Welcome to our December newsletter which features all the latest news and events from the neuromuscular community.
Articles in the edition...
- Message from the TREAT-NMD Executive Committee Chair
- Early Bird Registration now open for the TREAT-NMD 7th International Conference
- Successful TGDOC Annual Curators meeting
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Message From The TREAT-NMD Executive Committee Chair
Dear Members and Friends of TREAT-NMD,
As 2021 comes to an end, I would like to, as the Chair of the TREAT-NMD Executive Committee, wish the entire TREAT-NMD family a happy holiday season and best wishes for a safe and wonderful new year...
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TGDOC Annual Curators Meeting
The TGDOC Executive Board would like to thank all attendees and contributors who attended the TGDOC Annual Curators Meeting between Monday 22nd and Wednesday 24th November 2021 on the Whova platform...
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TREAT-NMD 7th International Conference Tickets Now on Sale & Abstract Submission Open!
Tickets for the 7th TREAT-NMD Conference 2022 are on sale now! You can purchase tickets via our website and Early bird rates are available until 31st January 2022...
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TREAT-NMD Global Registries Platform
The Global Registries Platform project team has had a fantastic year and had some great achievements!...
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Limb Girdle Muscular Dystrophy Core Dataset Project Update
This had been great year for the Limb Girdle Muscular Dystrophy (LGMD) dataset project, seeing it hold a number of workshops to draft the dataset and then run a successful exercise to test its feasibility with patient registries around the world...
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Duchenne Muscular Dystrophy Expanded Core Dataset Project Update
2021 has been a year of growth and progression for the Duchenne Muscular Dystrophy (DMD) project. Following the successful piloting of the draft dataset in 2020 and feedback from both Patient Focus and Working Groups, version 1.2 of the new DMD expanded core dataset was launched in June 2021...
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How to Get Involved with Conect4Children
c4c (conect4children) is a large collaborative European network that aims to facilitate the development of new drugs and other therapies for the entire paediatric population. As traditionally children and young people are not included in participating in clinical trials and have not had the opportunity to be involved in the design of clinical studies. c4c therefore offers the opportunity to involve children, young people and parents in the drug development process..
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European Congenital Myopathies Virtual Masterclass
TREAT-NMD are excited to confirm and welcome the following experts as co-chairs of our first ever European Expert Masterclass on Congenital Myopathies...
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International Conference and Call for Posters on Duchenne and Becker Muscular Dystrophy
The 19th International Conference on Duchenne and Becker muscular dystrophy, organized by Parent Project aps, will be held in Rome, at Ergife Palace Hotel, from the 17th to the 20th of February 2022...
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2nd Gene Therapy for Muscular Disorders Summit
The 2nd Gene Therapy for Muscular Disorders Summit will be returning as an in-person event to Boston in April 2022. The summit aims to help gene therapy developers, who are targeting muscular disorders to overcome safety and toxicity challenges and effectively translate their programmes into the clinic...
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Myology and mitoNice
AFM-Telethon is delighted to announce that they will be holding their 7th International Myology Congress in person next year. The congress will be held at the Nice Acropolis Congress Centre on the 12th to the 15th of September 2022...
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