Newsletter
April 2022

Welcome to our April Newsletter for all the latest TREAT-NMD news and events as well as updates from the neuromuscular community.

Articles in the edition...

TREAT-NMD Advisory Committee for Therapeutics meets in Italy
TREAT-NMD Conference update
TREAT-NMD Education Events coming soon
LGMD and DMD dataset updates
The latest NMD events

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TREAT-NMD Advisory Committee for Therapeutics meets in Italy

The TREAT-NMD Advisory Committee for Therapeutics was thrilled to host an in person meeting from the 22nd to the 24th of April in Bari, Italy...

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TREAT-NMD 7th International Conference.

7-9th December might seem far away, but it will be here in a flash! The 7th International TREAT-NMD Conference which will be a fantastic opportunity for patients, academics, clinicians, patient registry curators and industry representatives, indeed all TREAT-NMD stakeholders, to get together to network, learn and exchange ideas about translational research.

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TREAT-NMD Education Events coming soon

The LGMD Australasia masterclass on the 11th & 12th May 2022 is almost upon us and TREAT-NMD have a fantastic programme of expert speakers.
On June 28th 2022 we will also be holding a TREAT-NMD Expert SMA Education Event. This event is an expert-led update on developments in SMA...

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The TREAT-NMD Education Committee Welcomes New Member

We would like to welcome our newest member of the TREAT-NMD Education Committee, Olga Germanenko...

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LGMD and DMD Expanded Core Dataset

The latest updates from the team supporting registries to adopt the expanded core datasets for LGMD and DMD.

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The Big Sunflower Project

The Big Sunflower Project was established by Toni Abram in 2011 to raise awareness of the rare inherited neuromuscular conditions known as centronuclear and myotubular myopathy (CNM and MTM). Toni set up the project after she was diagnosed with centronuclear myopathy, along with her father Mike...

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Perceptions - Life with Muscular Dystrophy

Perceptions - Life with Muscular Dystrophy is a one night event capturing the figurative form through an eclectic range of original art...

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This Month's Featured Event- CureDuchenne 2022 FUTURES National Conference

The CureDuchenne 2022 FUTURES National Conference is a hybrid event which will take place in Florida from the 27th to the 29th of May...

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Upcoming Events

For information on upcoming conferences, events and rare disease days please visit the events section of our website. If you wish to notify us of an event that should be included in our listing, please complete the event form.

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Newsletter April 2022