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Newsletter
TGDOC Autumn 2021
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Welcome to our TGDOC Autumn newsletter where you can find all the latest dataset and Global Registry platform updates, updates from disease subgroups, events, publications, and much more all in one place.
Articles in the edition...
- TGDOC Membership Update
- TGDOC Annual Curators’ Meeting 2021 – Registration now OPEN!
- Upcoming Events at TREAT-NMD
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TGDOC Annual Curators’ Meeting 2021 – Registration now OPEN!
The TGDOC Chairs are delighted to invite curators to register for the 14th TGDOC Annual Curators’ Meeting, to be held online between Monday 22nd and Wednesday 24th November 2021 on the Whova platform...
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Registry Funding Support
For some time now, our TGDOC Member Registries have stated they would benefit from receiving some financial support to help with registry development...
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Limb Girdle Muscular Dystrophy Core Dataset Project Update: Pilot and Dataset Approval
These are exciting times for the Limb Girdle Muscular Dystrophy core dataset project. During the summer the project team designed the dataset pilot, proceeded to implement the pilot and analysed the pilot feedback. Pilot results have been presented to the Limb Girdle Muscular Dystrophy working group...
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Duchenne Muscular Dystrophy Core Dataset Project: Update on the Implementation & Roll Out Phase
The implementation of the Duchenne Muscular Dystrophy core dataset is in full swing. Since our last update in the summer, we are pleased to inform you that six registries have now implemented the new dataset into their existing platforms...
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TGDOC Membership Update
As of 22nd October 2021, a total of 55 NMD patient registries around the world have TGDOC Membership...
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TREAT-NMD Global Registries Platform
As part of the overarching Global Registries Platform (GRP) project, we are continuing to make progress...
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TREAT-NMD Posters displayed at the World Muscle Society Congress
The World Muscle Society (WMS) held its 26th Annual Congress virtually on 20-24 September 2021. TREAT-NMD displayed several posters at the congress...
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TREAT-NMD's E-learning Platform
TREAT-NMD are excited to be launching a new educational e-learning platform as of January 2022. The e-learning platform is intended for medical professionals wanting to learn more about the diagnosis, management and treatment of patients with neuromuscular disorders and courses will be free of charge...
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Few Places Remaining! Last Chance to Register for The Third International Conference on Imaging in Neuromuscular Disease 2021
The past few places are available for those who are fastest to register for the third International Conference on Imaging in Neuromuscular Disease...
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Upcoming Events at TREAT-NMD
We are pleased to announce that we have a whole range of educational events in the pipeline for 2022...
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Save the Date - International Conference on Duchenne and Becker Muscular Dystrophy
We are pleased to inform the entire Duchenne and Becker Muscular Dystrophy community that the 19th International Conference on Duchenne and Becker Muscular dystrophy, organized by Parent Project aps, will be held in Rome, at Ergife Palace Hotel from the 17th to the 20th of February 2022...
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Pre-symptomatic Spinal Muscular Atrophy Patients
New-born screening for SMA is occurring in numerous jurisdictions and countries throughout the world...
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