Newsletter
Autumn 2022

Welcome to our TGDOC autumn newsletter where you can find all the latest dataset and Global Registry platform updates, updates from disease subgroups, events, publications, and much more all in one place.

Articles in the edition...

TREAT-NMD 7th Annual Conference and the Annual Curators Meeting
TGDOC New Members
Registry Overview Publication

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Uncategorized Pascal Bernardon 8UWrhU209PQ Unsplash

TREAT-NMD 7th International Conference and Annual Curators Meeting

The 7th International TREAT-NMD Conference is fast approaching! This fantastic in person event will take place from 7-9th December 2022 in Vancouver, Canada...

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Uncategorized Towfiqu Barbhuiya NApaSgkzaxg Unsplash

Exciting Developments in the Global FSHD Registry Network

We are pleased to welcome two new TGDOC members...

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Uncategorized Element5 Digital T9CXBZLUvic Unsplash

Elections

The next election for a TGDOC Chair will take place later this year, with nominations opening after the curators meeting in December...

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Uncategorized Scott Graham OQMZwNd3ThU Unsplash

The Annual Registry Survey 2022

We'd like to remind all curators that we are currently conducting the annual survey of registries...

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Uncategorized Maximalfocus HakTxidk36I Unsplash

TREAT-NMD Duchenne Muscular Dystrophy and Limb Girdle Muscular Dystrophy Dataset Updates

The Global Registry Network team continues to engage with registries to progress the adoption of the latest DMD dataset (version 1.2) & LGMD dataset (version 1.0)...

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TREAT-NMD Spinal Muscular Atrophy Projects Update

There have been a number of interesting developments and events planned in TREAT-NMD spinal muscular atrophy (SMA) projects over the past few months...

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EMA Qualification - SMA Core Dataset and Global Registries Platform

Since late last year, TREAT-NMD has been working towards EMA Qualification for our spinal muscular atrophy (SMA) core dataset and Global Registries Platform/Central Data Warehouse...

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Newsletter Autumn 2022