TREAT-NMD has set up an international registry for patients with Spinal muscular atrophy (SMA). This registry collects data from registries across the world.

If you are a patient (or parent of a patient) with SMA and would like to register in the TREAT-NMD registry, you should do this via the registry in your country if one is available.

Please note that there is no benefit to you in registering in more than one country, since the data from each country’s national registry is sent to the TREAT-NMD global registry.

To quickly find your national registry, start typing your country name into the box below.