At the present time, there are no treatments that can slow down, stop or reverse the progression of muscle weakness in FSHD. However, there are a number of interventions that can alleviate the symptoms of FSHD. Physical therapy is helpful in certain instances and recommendations about physical therapy are published and can be found here. Regular low resistance and aerobic exercises is recommended and it is best to work with a physical therapist to set up a safe exercise program for each individual.
Some individuals with FSHD can benefit from surgical fixation of the scapula in order to improve their ability to lift their arms above shoulder level. Scapular fixation is a process by which the shoulder blades are fixed to the ribs at the back and can be carried out either on one or both sides. This is a major surgical procedure that should only be done by experienced surgeons and after careful discussions with the surgeon and the treating neurologist.