The 2022 RYR-1 International Family Conference
For a rare condition like RYR-1-related diseases, providing a forum for affected individuals and families to meet others like them has significant psychological value. When an affected individual or their family members seek to find someone else who understands what they are experiencing, a family conference becomes an invaluable and necessary resource. It is a goal of The RYR-1 Foundation to enhance and enrich these relationships within the RYR-1 community by hosting International Family Conferences every other year.
We hope to see you in 2022!