Duchenne Patient Academy 2022
As the dystrophinopathy field seeks to empower patient representatives to advocate for better lives for people affected by Duchenne and Becker muscular dystrophy, collaborating to educate the global community is essential. To help support this goal, we are excited to announce that applications for the 2022 edition of Duchenne Patient Academy are now open.
Title: Duchenne Patient Academy 2022
Date: December 1 – 3, 2022
Time: 15:00 – 19:00 Central European Time
Location: Online
Once again, Duchenne Data Foundation and World Duchenne Organization are partnering to enhance and expand knowledge about patient advocacy, and the skills that are needed to overcome challenges. Duchenne Patient Academy prepares to welcome 150 highly motivated patient representatives.
Applications will be open until November 10, 12:00 Central European Time.
This year’s theme is Changing Perspectives. The program is designed to balance the latest information with sharing of experience on topics that are of interest to the community. Expert presentations are followed by an interactive panel discussion, setting the strategic path for the future. The 2022 DPA curriculum consists of the following topics: Research & Innovation, Advocacy & Networking, and Care & Allied Therapies.
The program contains live interactive sessions with experts in their respective fields. Participants will learn how to make strategic decisions to scale up their organization, be updated on clinical research and developments, and implement learnings from the advocacy community to enhance the lives of people with dystrophinopathy in their country.
