TREAT-NMD Education Committee
Significant progress is being made in our understanding, diagnosis and management of neuromuscular diseases. There is a need to ensure that clinicians and other healthcare providers around the world involved in diagnosing, managing, treating and caring for patients living with neuromuscular diseases have access to information on the latest recommended practice and development, training and education.
TREAT-NMD recognised this need and created a range of masterclasses and a number of other education initiatives. The growing demand for these events led to the formation of the TREAT-NMD Education Committee (TEC). While the focus of TEC is on health care professionals, the Committee aspires to educate all stakeholders involved in the management and therapeutic development of NMD patients, including patients and families, industry colleagues and regulators.
Established in 2018, the TREAT-NMD Education Committee (TEC) is a board of experts (academics and patient representatives) who are affiliated with TREAT-NMD and have an interest in the education events and materials that TREAT-NMD produces. This group has overall responsibility for overseeing the quality, independence and appropriateness of all educational materials and activities created by, linked to or endorsed by TREAT-NMD.
For further information regarding the TEC and its role, please refer to the TREAT-NMD Education Committee Charter.
TREAT-NMD Education Committee
a.m.rus@lumc.nl
Prof. Dr. Annemieke Aartsma-Rus is a professor of Translational Genetics at the Department of Human Genetics of the Leiden University Medical Center.
Netherlands
Member
Jorge Alfredo Bevilacqua is currently Professor of the Department of Neurology and Neurosurgery of the Hospital Clínico Universidad de Chile, where he is the Head of the Neuromuscular Unit and …
Chile
andoni.urtizberea@gmail.com
Dr Jon Andoni Urtizberea is head of the internationally renowned Paris Summer School of Myology and a consultant at the neuromuscular reference centre at Hendaye Hospital in the French Basque …
France
Elizabeth Vroom is founder and president of the Duchenne Parent Project Netherlands since 1995 and Chair and co-founder of the World Duchenne Organisation (UPPMD). She is the mother of an …
Netherlands
TEC Secretariat
As an Education Coordinator, Clare is responsible for the organisation of DMD Educational Masterclasses and related educational events and projects. As well as DMD projects, Clare also works on masterclasses …
United Kingdom
lianne.mcevoy@treat-nmd.com
In her role as TREAT-NMD Education Support Assistant, Lianne provides administrative support to the Education and Events Coordinators and through the co-ordination of actions and activities on their behalf, enables …
United Kingdom
catherine.turner@ncl.ac.uk
Cathy Turner is Duchenne Programme and TACT Coordinator at the John Walton Muscular Dystrophy Research Centre. Cathy has also been responsible for supporting the NeurOmics project with significant involvement in …
United Kingdom
