TREAT-NMD Executive Committee
The TREAT-NMD Executive Committee, made up of 9 academic representatives and 4 patient representatives, took over governance of the network in 2012. The members of the Executive Committee were elected from the TREAT-NMD task force and from member patient organisations. The members of the committee then elected their Chair and Vice-Chair by majority vote.
The TREAT-NMD task force, intially set up to oversee the transition from the network’s EU funding status, was asked to nominate and vote for the scientific contingent of the committee. Over 120 patient organisations from 51 different countries were involved in the voting process to determine the three patient organisation representatives that complete the committee.
The Executive Committee is responsible for providing overall policy and strategic direction to the TREAT-NMD Alliance, oversees activities and progress, and delegates responsibility for day-to-day operations to the representatives of the various activity groups. The Executive Committee receives no compensation other than reasonable expenses. Members of the Executive Committee are elected as private individuals and not representatives of their home institution or organisation.
Main roles and responsibilities
- Represent TREAT-NMD at conferences and events
- Promote TREAT-NMD by including slides in presentations at appropriate events
- Deliver areas of the TREAT-NMD Action Plan Commitment
- Provide advice, opinion and expertise on issues raised at monthly meetings.
- Suggest ideas about the work of TREAT-NMD
The TREAT-NMD Alliance is governed by the charter which can be found here.