TREAT-NMD Ethics Board – TEB
The TREAT-NMD Ethics Board (TEB) identifies and examines ethical and social aspects of research taking place in the context of TREAT-NMD.
Mission Statement
The TEB is a voluntary multidisciplinary group comprised of clinicians, scientists, parents, ethicists and legal academics, patients and representatives of parent organisations. The TEB works in a collegiate, collaborative and inclusive manner to provide ethical guidance and balanced opinion in order to enhance the excellence TREAT-NMD aspires to.
Membership
Membership of the TEB is voluntary and drawn from the initial TREAT-NMD partner network, interest groups and invited external members. Members with special expertise, patient representatives, and other relevant groups may be co-opted as necessary.
Associated Contacts
Name: Alessandra Ferlini
Email Address: fla@unife.it
Alesandra Ferlini is a professor in medical genetics, director of the Medical Genetics section at the University of Ferrara (Italy), and coordinator o …
Name: Annemieke Aartsma-Rus
Email Address: a.m.rus@lumc.nl
Prof. Dr. Annemieke Aartsma-Rus is a professor of Translational Genetics at the Department of Human Genetics of the Leiden University Medical Center.
Name: Elizabeth Vroom
Email Address: evroom@euronet.nl
Elizabeth Vroom is founder and president of the Duchenne Parent Project Netherlands since 1995 and Chair and co-founder of the World Duchenne Organisa …
Name: Fabiola Bertinotti
Email Address: fabiola_bertinotti@libero.it
Since Fabiola’s adopted son was diagnosed with Facioscapulohumeral Muscular Dystrophy in 2005, Fabiola became deeply involved in the world of neuromus …
Name: Francesco Muntoni
Email Address: f.muntoni@ich.ucl.ac.uk
Francesco Muntoni (Professor in Pediatric Neurology, FRCPCH, FMedSci) is Director of the Unit with oversight of both clinical and research activities.
