Even when all the different types of CMD are considered together, the number of individuals affected is much smaller than for the more common types of neuromuscular disease like DMD and SMA. For this reason, there aren’t very many organizations that deal exclusively with CMD. There are many more organizations that cover all neuromuscular diseases, and these ones of course also support individuals with CMD and their families.
Below you will find a list of patient organizations and support groups that cover Congenital muscular dystrophy. This list deals exclusively with CMD, while organizations that deal with all neuromuscular diseases including CMD are listed on the following page.