The Guide to the 2017 International Standards of Care for SMA
TREAT-NMD are absolutely delighted to announce the publication of the ‘Guide to the 2017 International Standards of Care for SMA’. Clinicians, academics, health care professionals and patient representatives from Spinal Muscular Atrophy UK, Cure SMA, SMA Europe, Muscular Dystrophy UK and TREAT-NMD have used the 2017 care recommendations, to work together to produce a current and comprehensive medical guide for people with SMA and their families.
We are sure the community will find it a valuable resource to ensure the very latest in medical care standards are accessible to all people living with SMA.
The first version is written in UK English but will be translated into as many languages as possible. We need your help to do this, if you are interested in volunteering please click here or email Nicole O’Connor for further information.
Finally, we would like to extend a very gracious thank you to the authors of the scientific articles for peer reviewing the content and to the target audience reviewers for your extensive feedback.
If there is anything about the guide you love or would like to see changed please share your thoughts here – this will help us to improve subsequent versions.
Please click here to access the UK English PDF version.
Please get in touch with Nicole O’Connor if you would like the A5 file for high quality professional printing.