Pat Furlong
CEO
United States of America
Pat Furlong is the Founding President and CEO of Parent Project Muscular Dystrophy (PPMD) which she founded together with other parents of young men with Duchenne in 1994.
Along with leading PPMD, Pat speaks about Duchenne and related topics at conferences each year worldwide and is an active Board member with the Genetic Alliance and the Muscular Dystrophy Coordinating Committee, U.S. Department of Health & Human Services. She is also a committee member on the Collaboration in Education and Test Translation Program; and serves on the data safety monitoring board for both the Rare Diseases Clinical Research Network and Cooperative International Neuromuscular Research Group and TREAT-NMD STAC.
Organisations
Parent Project Muscular Dystrophy

Parent Project Muscular Dystrophy (PPMD) is the largest nonprofit organization in the United States focused entirely on Duchenne.They take a comprehen …
Committees
Science and Technology Advisory Council – STAC
The STAC comprised of a number of independent worldwide recognised scientists and industrialists whose role was to monitor the neuromuscular diseases …
TACT Extended Committee
Introduction to TACT Annamaria De Luca, as TACT chair, is leading this exciting initiative with the support of the TACT core, nominated committee memb …

Country
