Marie-Christine Ouillade
President of SMA Europe
France
Marie-Christine is the mother of a girl affected by SMA. She is a member of AFM Board of Directors, AFM international committee and TREAT-NMD Project Ethics Council. She is also Vice President of SMA Europe (association of European SMA patients)
Organisations
Association Française contre les Myopathies - AFM
Created in 1958 and managed by a group of patients and their families, AFM has become a strong organisation combining the militant energy of its found …
Committees
Extended Committee
Introduction to TACT Annamaria De Luca, as TACT chair, is leading this exciting initiative with the support of the TACT core, nominated committee memb …
Project Ethics Council – PEC
The Project Ethics Council identifies and examines ethical and social aspects of research taking place in the context of TREAT-NMD.
TREAT-NMD Executive Committee
The TREAT-NMD Executive Committee, made up of 9 academic representatives and 4 patient representatives, took over governance of the network in 2012. T …
Country
