Marie-Christine Ouillade
France
Marie-Christine is the mother of a girl affected by SMA. She is a member of AFM TELETHON Board of Directors also member of the board of SMA Europe (association of European SMA patients organisation) and a member of TREAT-NMD Executive Committee. She is also the chair of the steering committee of SMA NBS Alliance.
Organisations
Association Française contre les Myopathies - AFM
Created in 1958 and managed by a group of patients and their families, AFM has become a strong organisation combining the militant energy of its found …
Committees
TACT Extended Committee
Introduction to TACT Annamaria De Luca, as TACT chair, is leading this exciting initiative with the support of the TACT core, nominated committee memb …
TREAT-NMD Ethics Board – TEB
The TREAT-NMD Ethics Board identifies and examines ethical and social aspects of research taking place in the context of TREAT-NMD.
TREAT-NMD Executive Committee
The TREAT-NMD Executive Committee, made up of 9 academic representatives and 4 patient representatives, took over governance of the network in 2012. T …
Country
