United States of America
Joel’s son was diagnosed with Duchenne in 2000. Since the diagnosis Joel has utilized his connections and knowledge of Capitol Hill to help the Duchenne community build an incredibly strong and successful advocacy program.
Joel was the driving force behind passage of the Muscular Dystrophy CARE Act of 2001, a bill that has increased funding for MD research.
Joel also sits on the Board of Directors of Children’s Research Institute at CNMC, which has grown dramatically in recent years to be the largest pediatric medical research centres in the United States.